Hereafter

My parents died decades ago. They were good people who’d both fought in the Big One, and when they came to America, the country was still a land of welcome, wonders and innovations. They left Europe behind, abandoned the sooty streets and grey buildings of Paris to find a yellow clapboard house in the suburbs, with a yard and a driveway and an outbuilding for the garden tools and mower that my mother—being a city girl—did not know how to use until she was shown. They spent a bit more than 25 years here, became citizens who voted and appreciated what the land had to offer, and then they returned to France with what I think was a sigh of relief. Not that there was anything wrong with the States—there wasn’t—but they were French to the core and wanted to be in Paris where as newlyweds they were improbable radio stars, the main characters of the GI John et Janine show, where Janine saved the day and GI John, a not overly bright American soldier, basked in the love of his wily French wife.

We all anticipate our parents’ death, but when it comes and make orphans of us, it’s never quite what we expect. My mother died in 1992 at the American Hospital in Paris where some 46 years earlier, she’d given birth to me. My father died in the States four years later. He never fully got over his wife’s passing.

I always thought somehow one or both would send me a sign from Over There, but they never have. In fact, their total silence is almost disturbing. Almost everyone I know who has lost parents has told me that at some time they felt the parents’ presence nearby, reassuring in times of sadness or stress. Some have said the presence was almost physical; they were touched or kissed or hugged by long-gone family members and were never quite the same afterwards. Call it a spiritual experience, or a miraculous moment if you believe in such.

When I was first diagnosed with cancer, I was certain one or the other would come to advise and reassure. After all, they both went through it too—my mother died from hers, my father recovered from his—and they must have had words of wisdom ready to go. My father was stoical about his diagnosis when he was in his early 50s. He had weathered a war; people had shot at him and he had shot back, and I always had the impression he would be ready to go at any time. My mom panicked over his illness but bore her own with amazing courage. She was playing bridge with her cronies up to the end, never letting on that she was in frightful pain. In fact, I’m not sure she ever told my father the full extent of her illness, or that she’d been diagnosed with liver cancer, a killing version of the disease. Though she knew her death was impending, for good or for ill she opted stay silent almost until the end.

But there’s been nothing from them, not a word or touch or breath, not even an intimation that there may be something out there. I guess that 21 years ago when I spread my mother’s ashes on the green grasses of the Père Lachaise cemetery in Paris and followed the same ritual for my father a few years later, well, that was it. Whoever and whatever they were was subsumed by the greater universe. Their individualities, who they were, simply ceased to be.

That’s strange to me. I’m not religious but as I grow older and my own cancer refuses to go away, I’d like to think something—other than the fading memories of us that are held by others—remains after our death. And maybe it does and I simply haven’t been privy to it.

Whatever. I suppose if Maman et Pape are up there and want to get in touch, they know where I am better than I know where they are…

 

Website test

My website doesn’t seem to be working properly. This is a test. My beautiful and brilliant co-author is trying to fix my incredibly convoluted updating system. Can anybody hear me? Allo?

Twelve Minutes

So yesterday I had my twelve minutes of fame. Andy Warhol stipulated I should have gotten fifteen, but I had to visit the restroom for three minutes. In case you missed this important event, you can bear witness at www.tinyurl.com/waposagnier.


I can tell you, I’m glad it’s over; celebrity is not all it’s cracked up to be. No one recognized me in the street; no one hounded me for autographs. The paparazzi stayed well hidden. I did not get a free goodie bag full of great stuff or even a breakfast discount at Panera.

I think my minutes were overshadowed by those of a bank robber who escaped custody close to where I live. He was known locally

as the bicycle robber because that was his preferred mode of escape after pulling a job. Yesterday, during my minutes, he fled from a hospital and led a horde of police and sheriffs on a merry chase. I think his fifteen minutes were more adventurous than mine. On the positive side, mine didn’t involve guns or handcuffs.

I got a fair number of emails, one or two of the heartbreaking variety from people with far worse cancer situations than mine. I heard from old friends. I notified those old friends I did not hear from that my minutes were rapidly elapsing and got a couple more emails. I am now on YouTube with, as of this morning, 647 views. I know. Impressive.

Last Friday’s surgery went well, as those things go, though I won’t be sure until biopsy results come in later this week. No pain since they took the tubes out and now I can again walk like a man.

My new book is on Amazon and appears to be selling. I decided that anyone buying the paperback would get an EBook free, so here’s your chance for a twofer. It’s available from http://tinyurl.com/thirstbook. Being painfully honest, I have to divulge that it’s not an entirely new book but a re-edited version of a novel I wrote a few years ago, Wasted Miracles. But let’s be honest, even if once upon a time you read Wasted Miracles, you’ve forgotten it by now, and this is a new and much improved version with a totally cool new cover. So you should buy either the eBook version or the paperback and write reviews on Amazon and Goodreads, because nowadays, writers really have to flog their works in order to survive, so I plan to beat the living hell out of this one.

My new song, Jesus My Friend, an equal opportunity wail against all gods great and small, was featured but not fully played on www.CancerCanRock.org. It’s available from http://www.reverbnation.com/cashcarry.

I think I need another fifteen minutes.

    

 

  

 

 

Source: Epiphanettes: A Blog for the Rest of US

Operating Procedures

Rats, forgot the soft food!

Before every operation I stock up on stuff that’s easy to eat and free of spices. I’ve discovered that my digestive system, furious at being messed with, rebels after each surgery. Food is no longer my friend.

So off I go to Safeway. Ramen chicken soup, six bowls, check. Ginger ale, spring water, a couple of tomatoes, egg whites, check. Bob Evans macaroni and cheese, check.

The mac and cheese always makes me feel guilty. My late and sainted mother, when we first came to America, could not come to terms with yellow cheese. She likened to the blocks of wax used to polish the floor in our Paris apartment and in all honesty, the consistencies were about the same. She considered macaroni and cheese to be the devil’s food, designed to bind up a child’s insides. Whenever I had a stomach ache as a kid, that was the first question she’d ask: “Tu as mangé du macanjeeze?”

“Non, maman.”

“Tu es sure?”

Of course I was sure, I didn’t like the back stuff then and to this day am still not enamored. But it has actually been recommended by a couple of physicians, and who am I to buck medical wisdom.

Cat is fed and watered, humidifiers are full. Floors swept, bathroom moped. My surgery clothes are laid out: triple extra-large T shirt, leisure pants without a belt, espadrilles I can slip my feet into. No socks because after surgery I can’t bend over and put them on.

Ear-ring out. I’ve worn a single large hoop in my left ear for several years. No jewelry and is allowed, so I leave that at home.  

There’s always the sense that I’m forgetting something… I’m operating on clean-underpants-in-case-there’s-an-accident mode.

It’s raining outside, and the last of the dirt-stained snow piles are gone. Spring was just a few days ago and there are daffodils in my yard. I’m going to have to clean the pond out and hope some of the fish survived, and raccoons got in the garage, and I’ll attend to that as well. But not today. Today is surgery number nine.  

Okay. Ready to go.  Keep your fingers crossed.

Source: Epiphanettes: A Blog for the Rest of US

Toot Toot

It’s been an odd week.

I have surgery in two days, which does not foster peace of mind. This is number nine. I had really hoped number eight would be it, but c’est la vie.

On the other hand, some good stuff has happened.

The first is that my new book Thirst is out. Wait… I have to be honest, it’s not an entirely new book. It’s a rewrite of an earlier book, but still, it’s readable or so I’m told.

Thirst is available from http://tinyurl.com/thirstbook. Here’s the deal: If you buy the actual paper-and-ink book, you get a free copy of the e-book. Also, I’m giving away e-book copies to the first six people willing to write an honest review of Thirst on Goodreads and Amazon. I need the reviews because that’s how books sell… I can send you a book file in any of the E-reader format—mobi, epub, zip, or pdf. Contact me and let me know what works for you: thierry@sagnier.com.

A second good event is that the interview/video/recording of one of my songs, Jesus My Friend, was released yesterday by www.Cancercanrock.org. I’m pleased because I don’t look like a blithering idiot; it’s actually a really good video, for a really good cause. The song is available from my band’s page on http://www.reverbnation.com/cashcarry.

Third, the Washington Post will carry a piece on my Cancer Can Rock experience in its Health Section on Tuesday, March 31. What started out as a blog I wrote a couple of weeks ago was massaged into a feature article by Post editors. It’s been a long time since I’ve had something in that noteworthy paper so there is this sense of déjà vu; I worked there for years in the last millennium and used to be published regularly.

So there you have it. Forgive me for tooting my own horn, but self-publicity is a must in the brave new world of e-media. So toot too, or as they say in French, ta ra ta ta.
 

 

 

Source: Epiphanettes: A Blog for the Rest of US

Well, Crap

Well crapola, here we go again. Surgery number nine is in two weeks. I had heard of the repeated surgical procedures often necessary following serious burns, or reconstructive work after an accident, but I never thought of it in terms of dealing with cancer. Nine is a lot. The pre-op nurse I saw yesterday said, “You again?” Yeah, me again.

On the positive side, I now have a very cool song that was recorded by the Cancer Can Rock people (see March 4 Epiphanettes), and if you’re interested, I’ll send it to you. The CCR (www.cancercanrock.org) folks are worth following. They’re doing worthwhile and little-known work.

Remaining positive, it looks as if the Washington Post may run the recording session blog I wrote. This is good, though it has that déjà vu feeling. Forty years ago, I wrote regularly for the Post. Now I’m beginning to do so again. Life is weird.

And still remaining positive (although now it’s getting tiresome) I have a re-edited book on Kindle, Thirst. Personally, I think it’s pretty neat and if you’re looking for a quick read, go for it. If you like it, please give it a review on Amazon. I’ll be grateful. It’s at http://tinyurl.com/thirstbook

Lastly, it looks as if winter is over. I know, compared to other areas in the States, we in Northern Virginia had it easy—barely a foot. But what people don’t take into consideration is that Washington, DC, and its suburbs have the second worse traffic situation in the country. Add to that a very large population of, er, non-natives,who truly do not know how to drive generally, much less in snow, and here’s a disaster in the making.

A couple of weeks ago, a sudden snowfall caught me as I was returning from breakfast with friends. The highway home became brutally slick. Folks in SUVs decided the road’s shoulders were less crowded than the regular lanes and all of a sudden, I was surrounded by largish SUVs doing arabesques and sliding this way and that. It looked like an elephantine ballet. I drove away slowly hoping no one would get hurt and highly pleased my ancient car, normally unusable in the snow, managed to crawl its way home.

You take your joy where you can!

Source: Epiphanettes: A Blog for the Rest of US

Testing, Testing…

So this is when I start getting scared, five or six days before the next cancer checkup.  I feel good but I’ve learned not to trust my body.  I’ve felt great in the past as, unbeknownst to me, the disease progressed.

After three years I should be used to it, but I’m not. My blood pressure will soar when I get to the doctor’s office (I’ve learned this is called ‘white coat syndrome’), and the nurse will admonish me gently, tut-tutting as she suggests I close my eyes and imagine a peaceful scene. I try. A morning at the beach. A walk though Paris. Breakfast with friends. Lying in bed with a loved one. That lowers the bp a little and the nurse feigns happiness.

 I take my clothes off in the examining room. The nurse gives me a large antibiotic pill to stave off possible infection and slathers my crotch with sticky orange goo.  The doctor—the surgeon who has operated on me—threads a tube up my urethra. It’s not pleasant. There’s a tiny camera at the end of the tube, and my innards are displayed on a large screen above my head. I don’t look, even though I’m invited to do so every time.  I clench my teeth and ball up my fists. The procedure lasts a few minutes. The doctor renders his verdict.  If I’m clean, he congratulates me and I’ll see him for my next test in three months. If I’m not, he says uh oh, which is something you never, ever, want to hear a doctor say. Uh ho means I’ll be back on the operating table within a couple of weeks and the entire process will begin again.

Bladder cancer is neither sexy nor high profile. It’s an easy subject for jokes, of which I’ve been both the originator (I’ve threatened to name my next band the Bad Bladders) and the butt. It’s not necessarily lethal, but it did kill my oldest sister, as well as the husband of a friend, and a few thousand more.  And Andy Williams; mustn’t forget Andy Williams.

In the back of my mind, I always suspected I would get some form of cancer because my family has been riddled with it—mother (liver), father (prostate), sister (bladder), grandfather (lung), and great aunt (pancreas). I’d seen what it did to my dad, who recovered, and to my mom, who did not.  Neither was pretty. So when I was first diagnosed and after the initial shock, I thought one of two things would happen: I would get operated on and be cured, or I would be operated on and not be cured, and I’d die. I’ve been operated on—eight times to date; I haven’t died; I haven’t been cured.  I’ve been told three times that I was now cancer free and seven times that the cancer had returned. I am almost certain that the panic attacks that hit me with regularity are somehow related to pre-test and post-surgery anxieties.  I’m pretty sure I’ve taken a hit square in the self-esteem. Cancer makes me feel soiled and terminally unattractive. Psychologists agree such feelings are common if rarely discussed side-effects of the disease.    

I get to—quite literally—gird my loins.

Ha. Actually, that’s pretty funny!  

 

 

 

 

Source: Epiphanettes: A Blog for the Rest of US